We were informed Mallory is no longer considered a stage 2b patient but a stage 4 now. This is not what we had wanted but we assumed she would be now. They told us that they had a hard time staging her to begin with but with the spread to the liver this automatically bumped her up the scale. We just pray this heavy duty chemo works for our tiny bug.
So far so good, Mallory didn't have any bad reactions. She fell asleep during the cytoxan.
She is hooked up to the oxygen censor, a blood pressure cuff, EKG leads, and fluids running 24/7. So needless to say it's really hard to move around with her, it's hard to change her diaper, and there are LOTS of cords for her to grab onto. We also get to wear gloves every time we change her diaper.
We had a REALLY great nurse last night, we have to change Mallory's diaper EVERY 2 hours so that the chemo doesn't sit on her skin for long periods of time but she ROCKED and changed almost every diaper for me (there was no way I could wake up every 2 hours on the dot to remember to do it). And with the tons and tons of fluids running through her she goes through diapers like crazy! Her kidney function looks great along with her urine output.
We were told that we should anticipate by the 3rd day for her to start feeling bad. Reduce in appetite, more lethargic, and for her to not be her happy bubbly self. :-(
I would like to say THANK YOU to everyone for helping us out, we have just had an out pouring of support and we couldn't do it without you all! Thanks for all the emails, the gifts, EVERYTHING, nothing has gone unnoticed, Ryan and I are constantly gushing over your cards. My girlfriend Erika is setting up a calender so that when we are here or at home you can sign up to help us if you'd like.
Jillian is coming up today, so while Ryan's mom gets lots of Mally cuddles we get to run around the hospital with our 2 year old. I am SO excited to spend some time with her finally!
Two months later she was diagnosed with Neuroblastoma cancer.
After being Stage 4, enduring 6 rounds of chemo, two major surgeries:
This little fighter was declared in remission on May 18, 2012!!
This is her story.
If you FOUND our balloon from our Wayland, MI Balloon Launch on Mallory's Birthday leave a comment or email us at sweetbabymallory@gmail.com
It is good to see all the little things that are going right with Mallory :) Sometimes the bad can be overwhelming but all those smiles and that energy and the love keep bubbling up to the surface and reminding us that despite the bad, there is an awful lot of good, too {{hugs}}
ReplyDeleteHi Ashley! I have not met you yet. But lots of people know you that I know! My son Ike was diagnosed with leukemia fall of 2011 at 17 months old. I also have a 4 yr old and my youngest was 3 weeks when we found out! We are. Getting treatments at Helen Devon's also. So I wanted to say "hi" and I will be lurking your blog and praying for you as well!
ReplyDelete-Linda Quist (Ike's mom. )
Linda, thanks for sharing about Ike. I will be praying for your little angel now as well. God bless.
DeleteI can't even begin to imagen what your family is going thru. My dh currently has leukemia and is going thru chemo. It is very difficult having him go thru this, I can't imagen if it was my child. God bless your family and sweet baby Mallory!
ReplyDelete