Mallory did awesome last night, I couldn't bear to hear her whimper anymore so that sweet little girl has been snuggled up on my chest all night long. It's going to be hard getting used to working with all the things they have attached to her all the time, I am TERRIFIED I'm going to pull something out all the time. But the nurse assured us that we will get used to it and more comfortable as the days and weeks go by. The nurse kept asking also if I thought she was in pain, she whimpers a lot but how do you know and not know when your baby is in pain. They can't tell you whats going on, so I'm not sure if she is hungry or is hurting. But I have opted to give her medication as much as possible when she starts to wind up even a little bit. She hasn't eaten a drop in over 24 hours, her little tummy has got to be soooooo hungry! So we are waiting on the doctors to come in this morning and tell us when she can start eating and hopefully some other news.
They were not able to do the bone marrow biopsy, but that will be done next week along with the larger MIBG scan (again we will explain this soon as well). We should here about the bone scan sometime today though.
Ohhh and Ryan TOTALLY snores like crazy! I wish there was an easier way than digging my elbow into his chest to get him to knock it out. (I'm sure he will tell everyone he doesn't!)
ashley.
Two months later she was diagnosed with Neuroblastoma cancer.
After being Stage 4, enduring 6 rounds of chemo, two major surgeries:
This little fighter was declared in remission on May 18, 2012!!
This is her story.
If you FOUND our balloon from our Wayland, MI Balloon Launch on Mallory's Birthday leave a comment or email us at sweetbabymallory@gmail.com
I stumbled upon your blog through facebook....I am heartbroken for you guys, and pray that sweet baby Mallory will continue to do well. You sound like a strong couple, I had a very sick newborn. I can relate to your fears, I especially could relate to your comment about wishing you could trade places. Thank God, you had a wonderful pediatrician, that picked this up early. I just wanted to share with you, my handsome some will be 21 on 1-1-2012! Believe in miracles Hugs :)
ReplyDeleteI'm a friend of your Aunt Lavonne, and she forwarded the info on your blog to me. I'm praying for Mallory and for your family.
ReplyDelete