Friday, December 9, 2011

MIBG and Bone Marrow

(This picture is from the first night we brought Mallory home, it totally makes me smile. Jillian loves her little sister but she didn't know what to think at first!)

Mallory did AWESOME today, for not eating all night she was a champ. As soon as the sedation wore off she was ready for some food!!

They were able to do a successful bone marrow aspiration. So they should have the results for that hopefully by Tuesday or Wednesday. The MIBG results we should know by Monday at 10am. So this weekend is all waiting and huge knots in our stomachs.

We were able to see Jillian today for a few, she is such an amazing little girl. We miss her so much, we can't wait for next week when we have a small break until Friday.

Friday is when we get the game plan on how to treat Mallory's Neuroblastoma. This will for sure entail chemo and another surgery. But we have no idea when it will start, what meds she'll be on or what to expect.

I really just want "normal" life back. So tomorrow Ryan and I are picking up Christmas Gifts for our girls, some good friends of ours gave us money just for Christmas and we are forever grateful. There was no way we were going to be able to do it without them. We <3 You guys!

Ryan and I did EMERGENCY Bath tonight, Mallory threw up ALL of her bottle, it was soooooo gross. We haven't given her a full bath since her surgery so it was super nerve wracking but we did a GREAT job!

For life not really going the way we planned it, we are trucking along and taking it day by day.

-Ashley

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